480-270-2652
Our mission is to support sufferers of meningitis and their families through support groups, advocate for advanced research for the prevention and the long term effects of various meningitis strains as well as facilitating programs to educate the public

Contact Us

 


MFA National Headquarters

P. O. Box 1818
El Mirage,  AZ  85335
480-270-2652

 

 

Connect with our Board of Directors:

 

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Caroline L. Petrie
National Secretary
Caroline.petrie@musa.org

 

 

 

For web inquiries contact our web coordinator caroline.petrie@musa.org

Contact Us


Showing 58 reactions

followed this page 2016-03-26 06:20:38 -0700
commented 2016-03-26 05:56:09 -0700
Dear Sir/Madam,


I am writing to request you to kindly consider this email regarding treatment of Meningitis .


My son Hassan who is 14 year old has Meningitis since he was 6 years old and he has been treated since then but the results are not satisfactory . According to reports the cells in a right side of the brain are very weak and some water has been take out as well from his spinal cord. I am not sure about what type of Meningitis is it.


I am writing to request you to kindly consider this email and look into this case .


I would really be grateful if you could direct me towards the right person to whom I can send all the relevant documents for the review and treatment.


Looking forward to hear soon from you with positive response and support.


Kind Regards,

Farhan Brohi
commented 2016-03-12 00:54:20 -0700
Hello there.I am Jacq from Philippines.My friend Richard is 29 y/o and is now on his 9th mos. of meningitis and his family is seeking for help too,since the treatment is getting lengthy already.I wanted to help him ,but I have a family to support too.I know their situation ,since my youngest brother had a meningitis too,thank God we survived.I have read about different stories shared here and I hope your foundation can help my friend too.
commented 2016-02-14 21:17:12 -0700
Currently my sister got diagnosis with bactical mengitis and is in hospital. I am trying to find out if there is help for her such as patient assistance programs or financial assistance. She is uninsure and has no health insurance. Currently she is on vancomycin and rocephin which I have not found any assistance so far. Any information will be helpful
commented 2016-01-15 19:22:37 -0700
I would love to be able to help me find someplace that does research about meningitis that I can get help for my son who got bacterial meningitis at 5mths old and he now is 9yrs old. NO ONE believes me that his problems of hearing loss, ADHD, rage attacks, depression, and anxiety, learning disabilities. PLEASE HELP ME!!!!
commented 2015-12-14 05:46:55 -0700
What percentage of a donation is used for the charity and what percentage goes for administration?
commented 2015-10-10 07:37:45 -0700
Hola no hablo ingles pero queria saber si a traves de la fundacion pueden ayudar a una amiga que tiene a su bebe de una semana casi hospitalizado en el hospital luis chicho fabrega en santiago de veraguas panama republieca de panama. El bebe fue diagnosticado con meningitis y tiene el cerebro inflado y los doctores no pueden controlar eso no se si es por faltas de medicamentos en mi pais o falta de especialistas se que en el mundo mueren muchas personas por miles de enfermedades pero siempre he sonado que todos los paises de primer mundo se solidarizan con los mas bajos para suministrar las vacunas a las enfermedades que los paises y personas no tienen acceso. Todos somos humanos y en el momento que dejamos de vivir todos vamos para el mismo lado sin importar el color raza profesion estatus economico religion etc por favor ayuden a mi amiga para que su bebe pueda salvarse esta tan pequeño
commented 2015-10-03 21:40:23 -0700
Hi, I recently went to the FOR very sharp pains on the left lower side of my head, the ER doctor said it could have been meningitis but that he didn’t think it was because I wouldn’t have survived a whole week with that pain and ‘meningitis’ so he said I had a viral infection, but today I find out that when I was three I had meningitis and I was in the hospital for 2 weeks and people that would come see me had to be clothed in a specific manner, I was basically in isolation. I’m 18 now, and I had no way of figuring this out earlier because my mom passed away last year so I couldn’t ask her if I did have it or not, but today my aunt told me I did and now my question is can meningitis come back?

If so how worse does it come back, how would I know?
commented 2015-10-01 11:02:07 -0700
My baby sister, Savannah Alease Brooks passed away from Meningitis a year ago, after being sent back home during a doctors visit 2 days prior. It was, and still is a devastating circumstance that has left traumatic memories of the pain she suffered on my heart. Not only that, witnessing my mother go through the stages of mourning, is hard to bear. Especially knowing that there is no way I could possibly bring Savannah back to comfort her heart. Something I am super passionate about is Fashion. November 28, 2015, I will be putting on a Fashion Show not only to Magnify the legacy of Savannah Alease Brooks, but to spread awareness for Meningitis across the world. In conclusion, I would be honored and forever grateful if the Meningitis Foundation of America would consider collaborating with me on this powerful project.

P.S.

I would love to send you more details about Savannah’s Story. Please feel free to email for more details at keyanna.dudley@gmail.com
commented 2015-09-30 15:59:19 -0700
my grandson was born with purple feet and red blotches all over him alittle blood in left eye and right eye was swelled alittle . the nurses and staff at hospital all said this was normal . so we went home the second day of birth. nine day of birth we had a dr appointment which we took baby to and his oxygen was going from 100 to 85 so they said take him to er so we did ,,, when we got there they said he was having a siezure the did some test and hile they were doing this he stopped breathing they got him stable and sent him to a different hospital were there they did surgery and said he was having mini strokes. his blood work was all off showed signs of infection. but 5 days later they tested him and found out he has ecoli meningitis bacterial . but now they saying shaking baby but this is not true at all. we need as much stuff as we can get to prove they are wrong and this is all medical
commented 2015-09-30 14:21:33 -0700
Now detectives knocking on our neighbors doors even all they way down the steeets. One said there was a murder down the street from you and you have nothing to worry anout (which is a lie the baby had purple feet when born and red blotches all ove him alittle red mark in left eye and right eye was alitlle swelling ) and the nurses at hospital said all this was normal.. Well nine days old my grandson had mini strokes . so dont think all that was normal . purple feet signs of lack of oxygen. Red blotches sign of meningitis. Which we took baby to his dr that morning and she said his oxygen was going from 100 to 85 to take him to hospital which we did arrived at er and got in back to dr there stated he was having a seizure. They there did a bunch of test while in there care baby stopped breathing. They stabilized baby put tubes down nose and got him ready to transfer to umc.when arrived at umc tube had to be adjusted for it was in wrong.so there was a hour of not enough oxygen for baby. Which umc had to do surgery and doctor said no trama to baby but baby was having mini strokes. Now detectives cps trying to claim shaking baby .. Harrassing us coming all the time and now banging on neighbors doors that dont even no us.telling them a false statements. For this is not abuse but is medical now i am going to news and going to get our story out. They are slandering our names making false staements harrasssing us and all for what cps to make there buck off another illegal kidnapping.
commented 2015-09-18 08:04:07 -0700
Hello my name is Duncan Trotter, first off I am a student at Oak Hill High School located in Wales, Maine and I am a senior. At the end of the year seniors have to present a senior project in order to graduate. I decided to do mine on Meningitis Awareness for the reason that I have had a brother who unexpectedly died from the disease. My senior project is based around raising money and informing more an more people on Meningitis. I am in the process of looking for a foundation to help me get this movement started an raising as much money as possible to donate to the foundation. I appreciate your time an hope we can talk more about moving forward with this. Thank you for your time.
commented 2015-09-03 11:07:25 -0700
Caroline, It’s Tim Milazzo. Are you now the only board member ?

Is Kelly no longer involved, what’s up ?
commented 2015-08-21 11:44:04 -0700
I forgot to let you know about a great coupons website I know. If you want to shopping at discount price visit:

http://www.dealoscope.com
commented 2015-08-21 11:42:16 -0700
Great website
commented 2015-08-17 18:07:43 -0700
My daughter Kinsey was 20 and she died in Paris from menegoccocial. But she was vaccinated, where did we go wrong? Also I have the medical report.
commented 2015-08-03 12:59:57 -0700
commented 2015-07-30 17:32:36 -0700
commented 2015-07-30 17:32:35 -0700
posted about this on Facebook 2015-07-22 08:02:06 -0700
Contact Us
commented 2015-07-14 07:01:27 -0700
Mea Lily Meyer age 5 is in Clinton Hospital with Bacterial Meningitis Streptoccocus Pyogenes for 30 days now her infection count is down to 0.3 and her vitals are fine are there any new treatment or person we can contact for more information on this type of meningitis as there is a huge lack of knowledge here in South Africa.
commented 2015-07-09 15:28:40 -0700
From: kris arneson

Sent: ‎Sunday‎, ‎July‎ ‎5‎, ‎2015 ‎12‎:‎06‎ ‎PM

To: helpline@meningitis.org@ 9months old I had Meningitis, 2wks hospital stay 1963 given 3strains of inoculations, spinal tap to confirm. Long Term after effects I have read on your site. am clumsy, 86% deaf in left ear with old vestibular lesion damage noted by Neurologist via testing 2009. Difficult to get anyone to investigate this.


Seeking disability in the USA, Doctors in past are unresponsive to my claim to look at the possibility that meningitis @ 9months old is the baseline. Symptoms: slurred speech, balance, vertigo, dizziness, unable to feel steady on my feet, anxiety, some depression, unable to concentrate for long periods, difficulty reading so on so forth. Always exhausted.

Looking to present damage seen in MRI White Lesions Old Damage, may be related & Vestibular Damage to Left ear Old too.


Please help …. Kris Arneson 51yrs old 775 851 3913, 7450 Bluestone Drive Reno, Nevada 89511


Thank you sincerely for any assistance you may be able to give.

From: helpline@meningitis.org

Sent: ‎Wednesday‎, ‎July‎ ‎8‎, ‎2015 ‎7‎:‎34‎ ‎AM

To: kris arneson


Hello Kris


Sorry to hear about your experience of meningitis and the after effects. You might find our recovery page interesting.


Unfortunately we do not have the resources to offer support in the US and cannot advise on disability benefits there. Have you contacted the Meningitis Foundation of America for support?


Sorry we can’t help but we wish you well.


Kind regards


Helpline Team


helpline@meningitis.org


Freefone 080 8800 3344 (UK) Freefone 1800 41 33 44 (Ireland
commented 2015-05-15 12:29:05 -0700
HI my name is Jamie Ballew I married a wonderful man Jan 2013 who lost two sweet babies to meningitis one viral one bacterial. At the time he was very young and had just lost his wife durning child birth of their 8 th child. He didn’t have the money to mark their graves I’m trying to raise money just that cause to mark the place where this two precious babies are laid to rest I have a go fund me account but not sure what else I can do please help if you can point me in the right direction

Jamie Ballew

http://www.gofundme.com/u3q5qf7
followed this page 2015-04-18 16:42:18 -0700
commented 2015-04-09 14:36:38 -0700
I would love some information on if I do a fund raiser what do I do with the proceeds?
posted about this on Facebook 2015-04-02 20:37:24 -0700
April 24th. and always... remember!
commented 2015-04-02 20:33:42 -0700
Where can I get your musa.com bands? I would love to pass them out on April 24th. in memory of my Amanda.
commented 2015-03-20 04:40:59 -0700
How can I post my meningitis story on the MFA website?
commented 2015-03-08 21:01:02 -0700
Hello,


I recently checked my website (http://www.hkvstar.com), it was penalized by the unatural links. As I know the only way to remove this penalty is if I manage to remove these links to my site. Hence I REALLY need your help.


The following pages on your site contain links to our site:

http://www.musa.org/volunteers


Failure to remove the link to my site will result in me having to file a disavow report to Google. My concern is that if I submit your site to Google’s tool, this will flag your site up as “spammy” and not in compliance with their guidelines. The last thing I want is for you to have to go through this.


Your prompt attention and a response once the links have been removed would be highly appreciated.


Sorry for the hassle and thanks in advance for your help.


Regards,


Jackie
commented 2015-03-03 14:29:53 -0700
Do you have any additional information (flier, outline of services) that are available through the Meningitis Foundation of America? WOULD APPRECIATE RECEIVING ANY ADDITIONAL INFORMATION YOU HAVE REGARDING THE MFA.
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