Our mission is to support sufferers of meningitis and their families through support groups, advocate for advanced research for the prevention and the long term effects of various meningitis strains as well as facilitating programs to educate the public

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MFA National Headquarters

P. O. Box 1818
El Mirage,  AZ  85335



Connect with our Board of Directors:



Caroline L. Petrie
National Secretary




For web inquiries contact our web coordinator caroline.petrie@musa.org

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Showing 51 reactions

commented 2015-10-03 21:40:23 -0700
Hi, I recently went to the FOR very sharp pains on the left lower side of my head, the ER doctor said it could have been meningitis but that he didn’t think it was because I wouldn’t have survived a whole week with that pain and ‘meningitis’ so he said I had a viral infection, but today I find out that when I was three I had meningitis and I was in the hospital for 2 weeks and people that would come see me had to be clothed in a specific manner, I was basically in isolation. I’m 18 now, and I had no way of figuring this out earlier because my mom passed away last year so I couldn’t ask her if I did have it or not, but today my aunt told me I did and now my question is can meningitis come back?

If so how worse does it come back, how would I know?
commented 2015-10-01 11:02:07 -0700
My baby sister, Savannah Alease Brooks passed away from Meningitis a year ago, after being sent back home during a doctors visit 2 days prior. It was, and still is a devastating circumstance that has left traumatic memories of the pain she suffered on my heart. Not only that, witnessing my mother go through the stages of mourning, is hard to bear. Especially knowing that there is no way I could possibly bring Savannah back to comfort her heart. Something I am super passionate about is Fashion. November 28, 2015, I will be putting on a Fashion Show not only to Magnify the legacy of Savannah Alease Brooks, but to spread awareness for Meningitis across the world. In conclusion, I would be honored and forever grateful if the Meningitis Foundation of America would consider collaborating with me on this powerful project.


I would love to send you more details about Savannah’s Story. Please feel free to email for more details at keyanna.dudley@gmail.com
commented 2015-09-30 15:59:19 -0700
my grandson was born with purple feet and red blotches all over him alittle blood in left eye and right eye was swelled alittle . the nurses and staff at hospital all said this was normal . so we went home the second day of birth. nine day of birth we had a dr appointment which we took baby to and his oxygen was going from 100 to 85 so they said take him to er so we did ,,, when we got there they said he was having a siezure the did some test and hile they were doing this he stopped breathing they got him stable and sent him to a different hospital were there they did surgery and said he was having mini strokes. his blood work was all off showed signs of infection. but 5 days later they tested him and found out he has ecoli meningitis bacterial . but now they saying shaking baby but this is not true at all. we need as much stuff as we can get to prove they are wrong and this is all medical
commented 2015-09-30 14:21:33 -0700
Now detectives knocking on our neighbors doors even all they way down the steeets. One said there was a murder down the street from you and you have nothing to worry anout (which is a lie the baby had purple feet when born and red blotches all ove him alittle red mark in left eye and right eye was alitlle swelling ) and the nurses at hospital said all this was normal.. Well nine days old my grandson had mini strokes . so dont think all that was normal . purple feet signs of lack of oxygen. Red blotches sign of meningitis. Which we took baby to his dr that morning and she said his oxygen was going from 100 to 85 to take him to hospital which we did arrived at er and got in back to dr there stated he was having a seizure. They there did a bunch of test while in there care baby stopped breathing. They stabilized baby put tubes down nose and got him ready to transfer to umc.when arrived at umc tube had to be adjusted for it was in wrong.so there was a hour of not enough oxygen for baby. Which umc had to do surgery and doctor said no trama to baby but baby was having mini strokes. Now detectives cps trying to claim shaking baby .. Harrassing us coming all the time and now banging on neighbors doors that dont even no us.telling them a false statements. For this is not abuse but is medical now i am going to news and going to get our story out. They are slandering our names making false staements harrasssing us and all for what cps to make there buck off another illegal kidnapping.
commented 2015-09-18 08:04:07 -0700
Hello my name is Duncan Trotter, first off I am a student at Oak Hill High School located in Wales, Maine and I am a senior. At the end of the year seniors have to present a senior project in order to graduate. I decided to do mine on Meningitis Awareness for the reason that I have had a brother who unexpectedly died from the disease. My senior project is based around raising money and informing more an more people on Meningitis. I am in the process of looking for a foundation to help me get this movement started an raising as much money as possible to donate to the foundation. I appreciate your time an hope we can talk more about moving forward with this. Thank you for your time.
commented 2015-09-03 11:07:25 -0700
Caroline, It’s Tim Milazzo. Are you now the only board member ?

Is Kelly no longer involved, what’s up ?
commented 2015-08-21 11:44:04 -0700
I forgot to let you know about a great coupons website I know. If you want to shopping at discount price visit:

commented 2015-08-21 11:42:16 -0700
Great website
commented 2015-08-17 18:07:43 -0700
My daughter Kinsey was 20 and she died in Paris from menegoccocial. But she was vaccinated, where did we go wrong? Also I have the medical report.
commented 2015-08-03 12:59:57 -0700
commented 2015-07-30 17:32:36 -0700
commented 2015-07-30 17:32:35 -0700
posted about this on Facebook 2015-07-22 08:02:06 -0700
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commented 2015-07-14 07:01:27 -0700
Mea Lily Meyer age 5 is in Clinton Hospital with Bacterial Meningitis Streptoccocus Pyogenes for 30 days now her infection count is down to 0.3 and her vitals are fine are there any new treatment or person we can contact for more information on this type of meningitis as there is a huge lack of knowledge here in South Africa.
commented 2015-07-09 15:28:40 -0700
From: kris arneson

Sent: ‎Sunday‎, ‎July‎ ‎5‎, ‎2015 ‎12‎:‎06‎ ‎PM

To: helpline@meningitis.org@ 9months old I had Meningitis, 2wks hospital stay 1963 given 3strains of inoculations, spinal tap to confirm. Long Term after effects I have read on your site. am clumsy, 86% deaf in left ear with old vestibular lesion damage noted by Neurologist via testing 2009. Difficult to get anyone to investigate this.

Seeking disability in the USA, Doctors in past are unresponsive to my claim to look at the possibility that meningitis @ 9months old is the baseline. Symptoms: slurred speech, balance, vertigo, dizziness, unable to feel steady on my feet, anxiety, some depression, unable to concentrate for long periods, difficulty reading so on so forth. Always exhausted.

Looking to present damage seen in MRI White Lesions Old Damage, may be related & Vestibular Damage to Left ear Old too.

Please help …. Kris Arneson 51yrs old 775 851 3913, 7450 Bluestone Drive Reno, Nevada 89511

Thank you sincerely for any assistance you may be able to give.

From: helpline@meningitis.org

Sent: ‎Wednesday‎, ‎July‎ ‎8‎, ‎2015 ‎7‎:‎34‎ ‎AM

To: kris arneson

Hello Kris

Sorry to hear about your experience of meningitis and the after effects. You might find our recovery page interesting.

Unfortunately we do not have the resources to offer support in the US and cannot advise on disability benefits there. Have you contacted the Meningitis Foundation of America for support?

Sorry we can’t help but we wish you well.

Kind regards

Helpline Team


Freefone 080 8800 3344 (UK) Freefone 1800 41 33 44 (Ireland
commented 2015-05-15 12:29:05 -0700
HI my name is Jamie Ballew I married a wonderful man Jan 2013 who lost two sweet babies to meningitis one viral one bacterial. At the time he was very young and had just lost his wife durning child birth of their 8 th child. He didn’t have the money to mark their graves I’m trying to raise money just that cause to mark the place where this two precious babies are laid to rest I have a go fund me account but not sure what else I can do please help if you can point me in the right direction

Jamie Ballew

followed this page 2015-04-18 16:42:18 -0700
commented 2015-04-09 14:36:38 -0700
I would love some information on if I do a fund raiser what do I do with the proceeds?
posted about this on Facebook 2015-04-02 20:37:24 -0700
April 24th. and always... remember!
commented 2015-04-02 20:33:42 -0700
Where can I get your musa.com bands? I would love to pass them out on April 24th. in memory of my Amanda.
commented 2015-03-20 04:40:59 -0700
How can I post my meningitis story on the MFA website?
commented 2015-03-08 21:01:02 -0700

I recently checked my website (http://www.hkvstar.com), it was penalized by the unatural links. As I know the only way to remove this penalty is if I manage to remove these links to my site. Hence I REALLY need your help.

The following pages on your site contain links to our site:


Failure to remove the link to my site will result in me having to file a disavow report to Google. My concern is that if I submit your site to Google’s tool, this will flag your site up as “spammy” and not in compliance with their guidelines. The last thing I want is for you to have to go through this.

Your prompt attention and a response once the links have been removed would be highly appreciated.

Sorry for the hassle and thanks in advance for your help.


commented 2015-03-03 14:29:53 -0700
Do you have any additional information (flier, outline of services) that are available through the Meningitis Foundation of America? WOULD APPRECIATE RECEIVING ANY ADDITIONAL INFORMATION YOU HAVE REGARDING THE MFA.
commented 2015-01-28 12:44:17 -0700
I was wondering if you have any material that I could share at my blood drive. I host 1-2 drives every year, in memory of my son , Jeremy, whom I lost to Mengococcemia in Oct. 2010. He was only 22 years old.

My sister contacted a lady who got her some shirts, hats, bumper stickers, and magnets, and banners with his name on it, and I would like to share this with my blood drive particiapants too, as it has more meaning than most will ever know! Please contact me if this is a possibility, as I was joyed to see the banner and shirt and wear the hat in memory of him, and would be joyed to have items that have personal meaning to share.

Thank You, Vicki
commented 2015-01-20 08:10:22 -0700
I am trying to find a treatment and rehab program for a 58 yr old woman who had severe bout of viral meningitis in July of 2014. She has short term memory loss & personality changes. She is unable to live alone or work as an RN. She has received little therapy and is being treated as a dementia patient. Who is working on the unique post meningitis patient’s unique needs? We will take her anywhere for help.
commented 2015-01-06 17:57:26 -0700
Hello! My mother suffered severe brain trauma due to Listeria Meningitis. In our 26 year effort towards her slow recovery, and in response to some recent complication, we have come across a new treatment plan that is proven successful but is not yet recognized by insurance plans. The program, Neurofit, uses PT/OT to access brain function in an effort to recover what was lost in the Meningitis trauma. The program costs $4000—which of course we don’t have due to decades of mom’s abundant medical costs and disability. Regular PT has not worked to date. Our immediate goal is to keep her from falling (a daily occurrence) and severely hurting herself (a common occurrence). While we are saving up for the treatment, we are looking for any grants that might be available to her. Time is of the essence as she injures herself daily.

Many thanks,

commented 2014-12-30 23:26:00 -0700
Hello, I am posting this on behalf of the Beckett family. Yesterday, they lost their 13 year old son to bacterial meningitis. It was a very tough road and Ryan lost his fight. I am asking for support for his family. Kind words, prayers, donations, anything and everything is welcome. Thank you so much! https://www.youcaring.com/medical-fundraiser/join-ryan-s-fight-/281967
commented 2014-12-15 08:38:48 -0700
Nous sommes une association des mamans soucieuses des enfants et cherchons des partenaires financiers pouvant résoudre les problèmes des enfants handicapés à Kimpese en RDC
commented 2014-08-31 09:31:25 -0700
Buenos días, soy un sobreviviente de una meningitis bacterial, monocytogenes listeria, gracias a Dios sin ninguna secuela y estoy buscando una ong o fundación que se pueda interesar en mi testimonio de esta terrible enfermedad que no solo es afectada por uno, si no hasta por la gente que esta cerca de uno. Gracias.
commented 2014-08-12 18:44:10 -0700
Hi, I am a two-time, bacterial meningitis survivor. The first time, I was about 24 hrs from death! I was in the hospital for about a month. The second time I was more aware of the symptoms.

Now, my dilemma is the after affects! I feel like I am talking to the air, when I am describing my symptoms to doctor’s!

I have headaches pretty much daily. Or, head pressure. They msy not ladt all day long and the severity differs. I have major balance issues, short-term memory loss and/or lapses, extremely fatigued at times, mood swings,

loss of concentration, unable to express myself, (I can’t think of the words I’m trying to say). Loss of hearing, rt ear.

I think I am forgetting a few things I wanted to say.

I was 44 yrs old, the first bout and 49 yrs old the second time.

I don’t know who to talk to around where I live! I feel doctor’s around here do not have a clue about the after effects from bacterial meningitis and the magnitude it plays on me, physically and emotionally.

Can you please help me and hopefully steer me in the right direction?

Thank you so much for your time and patience!
Very Fondly,
Mary Jo McAllister
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